

Thandi Mokoena
Active· since Aug 29, 2026
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Please stop waiting for your nonverbal child to be ready to speak. I know how that sounds. But I waited two years, on professional advice, and the waiting was the only part I regret. I'm Thandi, from Midrand. My son Luthando has had a speech therapist since he was two and a half. An educational psychologist assessment at three. Occupational therapy from four. I am not someone who gave up easily or missed sessions or stopped implementing what the professionals asked of me. I did everything that was asked. And in between everything that was asked, I waited, because waiting was what every good parent around me seemed to be doing. The paediatrician told me to wait. Boys talk late, she said. Give it six months. The speech therapist told me the progress would come with time and consistency. My mother told me he would speak when he was ready. So I waited. Luthando was two when we first noticed the silence growing. At first I thought it was temperament. He was always a quiet child. Watchful. He had his own way of communicating, pointing, pulling, sounds we learned to read. But he didn't expand. He contracted. By three, he had maybe thirty words. He could not string them into a sentence. He could not tell me when he was hurt. Could not tell me when he was scared. There were mornings he would come to me clearly distressed, crying, rocking, pulling at his own hands, and I could not find the thing that was hurting him. Those were the moments that broke me the most. Not because I didn't try. Because I tried everything and still could not reach him. So we did what you do. Speech therapy, R750 a session, every week. Occupational therapy, R650 every second week. A full educational psychologist assessment, R5,500. A developmental paediatrician, R2,800 for the first assessment, R1,400 for the follow-up. Each one excellent. Each one producing a report. Each report recommending more of the same. More sessions. More time. More waiting. Over eighteen months we spent close to R90,000. Luthando was still mostly silent. The developmental paediatrician ran a blood panel. Complete metabolic, iron studies, folate. She called me in and said the words I had been told before. "Everything looks normal. Nothing to flag." I sat in the car for twenty minutes before I could make myself drive home. If everything was normal, why was my child still not speaking? And I did what I had been taught to do with that question. I waited some more. I used to wonder, and I have never said this out loud, whether I had done something wrong during pregnancy. Whether I had missed something in those early months. I know it is not a logical thought. I am saying it because I had it, and I suspect I am not the only one. At home, Luthando's older sister Lerato had started speaking for him everywhere they went. At Pick n Pay. At church. She was seven and she had taken it on without being asked. My mother told me he needed more stimulation. "You must talk to him more," she said, as if I had not been sitting on the floor talking to him every single evening for two years. I stopped taking him to family gatherings. The questions had become too heavy to carry. By the time we walked into what I assumed would be another routine speech therapy session, I had quietly stopped expecting answers. I wasn't looking for a breakthrough anymore. I was looking for acceptance. That was the day I found out what the waiting had actually been costing us. The session finished the way they always did. We packed his things. I thanked his therapist, Nolwazi. We walked toward the door. She stopped me. "Thandi, can I ask you something? Something nobody may have asked you before?" She asked what supplements Luthando was taking. I listed them. The multivitamin. The omega-3. The iron he'd been prescribed. "Has anyone ever spoken to you about methylfolate?" I told her his folate had come back normal on the blood panel. She looked at me carefully. "The folate in his blood and the folate in his brain are not the same measurement. The blood test tells you what is circulating. It does not tell you what is crossing into the brain." Then she explained something no one in two years of expensive, careful, professional care had ever mentioned. Many children with communication difficulties have a gene variant called MTHFR that affects how their bodies convert standard folic acid into the active form the brain actually uses. So the folic acid in his multivitamin, the one he took every morning, may have been going in and having very little effect. Not because I chose the wrong product. Because his body cannot complete the conversion. "Why didn't any of his doctors test for this?" "It is not part of the routine paediatric workup in South Africa. Most children are never tested. Most parents are never told." I drove home that evening and read until past midnight. Study after study. Research showing up to seventy percent of children on the autism spectrum have folate receptor issues, meaning their brains resist the standard form of folate in every mainstream supplement and fortified food. The folate was there. It just could not get through. And the neurotransmitters that build language were being produced at a fraction of capacity. The whole time I had been waiting, this had been sitting underneath everything. Not waiting with me. Working against him. That is why I opened this the way I did. The mistake was never the therapy. The therapy matters. Luthando's sessions matter. The mistake was believing that waiting was neutral, that if something biological was wrong, someone in the system would have found it. Nobody was looking. Waiting was not a plan. It was just the absence of a question. I messaged Nolwazi that night. She said specialist genetic panels existed but were expensive and slow, and that she had been recommending parents start with a methylfolate supplement that bypasses the conversion step entirely, delivering the active form the brain can use directly. She had seen real changes in children at her practice. She sent me a link to Pyrella Kids Methylfolate Plus B12 Cofactor, a liquid supplement formulated for children, with the B12 cofactor included because the two work together. I want to be honest. My first response was not hope. I had been burned by supplements before. The omega-3 protocol. The probiotic. The zinc. I had a shelf in my kitchen that was a quiet inventory of things I had tried and put down. But Nolwazi was not selling me anything. She had worked with Luthando for two years and had never recommended a product before. I ordered it on a Wednesday evening. It arrived on Monday. Four drops in his yoghurt. He didn't notice. For the first five days, nothing changed. On day three I felt the particular foolishness of having let myself believe again. On day six, Luthando walked into the kitchen while I was making breakfast, looked at what I was doing, and said, "Toast." Not a new word. But unprompted. Unasked. On his own. I put down the knife and did not move. On day nine he pulled at my sleeve and said, "Mama, I'm hungry." Four words. A sentence. Sipho turned off the television and we both sat very still and looked at our son. Over the following weeks the words came more often. Not a flood. Slowly, the way things come when they are real. He began initiating. Naming what he wanted. Telling us when he was tired. Lerato stopped speaking for him. She didn't have to anymore. He is still Luthando. There are still hard days. But at his next session the occupational therapist noted, without me saying anything, that he presented with notably increased verbal initiation. She asked what had changed. I showed her. I am sharing this for the mother who is being told, right now, to wait. Who has the folder, the reports, the sessions, and a quiet instruction from everyone around her to give it more time. I am not telling you to stop the therapy. I am telling you that waiting only works if someone has already asked every question. Nobody had asked ours. Pyrella comes with a 90-day money-back guarantee. Ninety days. If nothing shifts, you get every rand back, no forms, no argument. That guarantee was the only reason I was willing to try something new after everything we had already put down. I had nothing to lose by trying it once. And neither do you. I'm not saying it will work for every child. Every child is different and Nolwazi said that too. But if you have been waiting, and doing everything, and the ceiling has not moved, this might be the question nobody has thought to ask you. The link is just below. Because your child deserves a brain that has everything it needs to reach you. And you deserved to be told that before you were told to wait.
Read this if your child has never said your name
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