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Marcus King
Marcus King

Inactive· since Jun 20, 2026

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I was put on gabapentin three years ago and my doctor didn't tell me it was never FDA approved for nerve pain. I found that out myself. At 1 in the morning. Sitting on the edge of my bed because my feet were burning through the medication that was supposed to stop them from burning. Gabapentin was made for seizures. Epilepsy. That's what the FDA approved it for. Prescribing it for neuropathy is off-label. Meaning nobody specifically designed it, tested it, or approved it for what was happening in my feet. It got prescribed for nerve pain because it partially reduces the signal. Enough that you stop complaining. Not enough that you actually get better. I wish someone had told me that before I spent three years on it. Let me back up. I got diagnosed with Type 2 diabetes at 48. My doctor put me on Metformin. 1000 milligrams twice a day. It did its job. A1C came down. Blood sugar leveled out. I adjusted my diet, dropped some weight, and for a while that was the whole story. I felt fine. My doctor was happy. I didn't think about it much. About three and a half years in, my toes went numb. Not all of them and not all at once. Just this dead feeling at the tips, like they'd fallen asleep and never woke up. I didn't even mention it to my doctor the first time I noticed. I'm diabetic. Things happen. I figured it was circulation. Then the numbness spread. Balls of my feet. Then the arches. Then the tingling started – this constant low buzzing, like my feet were plugged into something. Both feet, all day. It was almost unbearable at night. Then the burning. I don't know how to explain the burning to someone who hasn't felt it. It's not like touching something hot. It's like heat coming from inside. The soles of my feet felt like they were being cooked from the inside out. And at night it got so bad I'd lie there with my feet hanging off the mattress because the feel of the cotton bedsheets felt like ground glass. My wife would be asleep next to me and I'd just lie there at 2 in the morning staring at the ceiling waiting for it to die down enough to close my eyes. That went on for months before I said anything to my doctor. He barely looked up from my chart. "Diabetic neuropathy," he said. "Very common. Diabetes damages the small nerve fibers over time. We'll manage it." Manage. Not fix. Not investigate. Not figure out why. Manage. He wrote me the gabapentin script. 300 milligrams, three times a day. And at first, I was grateful. The burning backed off enough that I could sleep. Not well. But I wasn't hanging my feet off the bed anymore. I could get five, sometimes six hours. That lasted about five months. Then the burning started leaking back through at night. Back to the doctor. He bumped me to 600. That bought me maybe four months. Then 900. I'm at 1200 now. And I need to tell you something I wish somebody had told me when this whole thing started. Gabapentin does not repair nerves. Let me say that again because I didn't know this for three years. It does not repair a single nerve fiber. It does not slow down nerve damage. It does not address a single thing about why your nerves are deteriorating. It only reduces how well pain signals travel to your brain. That's all it does. The nerve damage keeps happening underneath it. You just don't feel it as clearly. And the dose keeps climbing because the damage keeps getting worse. So it takes more drug to cover more damage. And every six weeks you're back in that office, your doctor adjusts the number, and you go home. But this is just part of the problem. Gabapentin is also very well known for its side effects. It made me so drowsy I couldn't function after 2 in the afternoon. I'd be sitting at my kitchen table at 3pm and my eyelids would be made of concrete. I’d have constant brain fog as well. Not the regular kind where you forget why you walked into a room. It felt like somebody wrapped my entire brain in wet cotton and every single thought had to push through it before it could reach me. I'd be talking to my wife and a word like "cabinet" or "Saturday" would just vanish. She'd finish the sentence for me and I'd nod. She stopped looking surprised when it happened. That's how often it happened. I was a machinist for 28 years. I ran a four-axis mill. I read blueprints and saw finished parts in my head before I touched the machine. I had to work in thousandths of an inch. My mind was the sharpest thing I had and that's not bragging. That's just what the job required. I gained 18 pounds in the first six months on gabapentin. Not from eating more but from moving less. My wife started cooking lighter meals thinking it would help. It wasn't the food. I told all of this to my doctor. The brain fog. The drowsiness. The shaking hands. The dizziness when I stand up too fast. He looked at my chart. Not at me. At my chart. He said the cognitive effects were within normal range for my dosage. Then he asked if I wanted to try Lyrica. I sat in the parking lot after that appointment for a long time. He wasn't trying to find out what was wrong. He wasn't asking why the damage was happening. He was offering me a different drug that does the same thing the same way. Three years. Three neurologists. Two endocrinologists. A nerve conduction study that came back "consistent with moderate peripheral neuropathy." Gabapentin. Lidocaine cream that did nothing. Capsaicin cream that burned so bad I couldn't walk for an hour after putting it on. Alpha lipoic acid for eight months at $45 a bottle – slight improvement, then nothing. A $60 a month "nerve support" formula from a health forum. Benfotiamine. Acetyl-L-carnitine. Physical therapy twice a week for three months at $80 copay per visit. I added it up once. Over $5,000 in three years between the supplements, the copays, the specialist visits, the prescriptions. My symptoms were worse than when I started. And every single person in the system – every doctor, every specialist, every pharmacist who filled that gabapentin script every month – didn’t even seem to care. Not one of them ever stopped and asked WHY the nerves were being damaged in the first place. They all accepted the label. Diabetic neuropathy. Here’s a drug. Case closed. That night I couldn't sleep. One in the morning. Feet burning through the gabapentin again. I was scrolling through a Facebook group for diabetics with neuropathy. I wasn’t even looking for anything anymore, just reading other people's stories. And I found a post from a guy who was just like me. Type 2 diabetic. On Metformin for years. Developed neuropathy. Doctor called it diabetic neuropathy. Put him on gabapentin. Dose kept going up. Brain turned to mush. Same story. Exactly the same. But then he mentioned something that shocked me. He said his wife finally dragged him to a naturopath who ran a different set of labs. Not the standard blood panel. Tests called methylmalonic acid and homocysteine. His regular B12 came back at 310. His doctor said it was normal. "Perfectly fine." Same thing my doctor told me. Almost the same number. But these other markers told a completely different story. They showed his body was starving for B12 at the cellular level. The standard blood test measured what was floating around in his blood. It didn't measure what was actually getting into his cells. And the two numbers didn't match at all. The naturopath told him something I haven't stopped thinking about since the moment I read it. She said Metformin depletes B12. Not as a rare side effect. Not as a maybe. As a documented, published mechanism that's been known since 1971 and affects between 10 and 30 percent of people who take it. She explained B12 gets absorbed in the last section of your small intestine. It binds to something called intrinsic factor in your stomach, travels down to the end of the intestine, and latches onto the intestinal wall. Metformin disrupts this process. It physically blocks the pathway your body uses to get B12 from your gut into your bloodstream. So every day for seven years I took a pill that managed my blood sugar. And every day for seven years that same pill was quietly cutting off the supply of the one vitamin my nerves depend on to stay intact. And nobody told me. Nobody said "Hey, this drug can deplete your B12, so we should keep an eye on that." Nobody checked. Nobody ran the right test. Nobody connected Metformin to neuropathy. For seven years. And here's what happens when your B12 gets drained for that long. Your nerves are wrapped in a protective layer called a myelin sheath. It keeps signals running clean. When that layer breaks down, the nerve underneath is exposed. So signals start to misfire. That's what causes the burning, tingling, and numbness. Your body rebuilds that layer constantly. It's designed to. But the repair process requires B12. Not as a nice-to-have, but as a direct, essential requirement. B12 is necessary for myelin production. Without enough of it, the rebuild can't happen. And your doctor looks at you and says "diabetic neuropathy" and writes the gabapentin script. Because B12 deficiency neuropathy and diabetic neuropathy look very similar. They just stamp it "diabetes" and hand you the drug and send you home. Meanwhile the Metformin keeps running. The B12 keeps dropping. The myelin keeps thinning. And every six weeks you're back in the office and the number on the gabapentin script goes up. Everyone involved in that loop gets something out of it. The doctor gets a follow-up visit. The pharmacy gets a monthly fill. The drug company moves another unit. The specialist gets a referral fee. The insurance company processes another claim. After I read all of this I thought fine. Simple. I just need B12. I went to CVS the next morning and bought a bottle off the shelf. Took it every day for six weeks. Nothing happened. Not a single thing. If anything I felt more stupid than before because I'd gotten my hopes up over something I found on Facebook at 1 in the morning. I wanted to throw the bottle in the trash and never think about it again. But when I reread the post, that guy from the group had said one more thing that I missed. He said the form matters. I looked at the bottle I bought from CVS. The label said cyanocobalamin. That's the cheapest form of B12. It's in every multivitamin, every B-complex, every drugstore B12 supplement you've ever seen. Your body can't use cyanocobalamin directly. It has to convert it before your nerves can do anything with it. That conversion needs stomach acid and the same intrinsic factor absorption system in your small intestine that Metformin has been disrupting for years. I need you to stop and read that again. The B12 I bought requires the exact absorption pathway that my Metformin has been blocking. I was trying to fix a deficiency caused by broken absorption with a supplement that needs the same broken absorption to work. That's why it didn't do anything. Not because B12 doesn't matter. Because the form I bought couldn't get past my own gut. I nearly gave up for good. Then I read that the guy from the group mentioned a company called Nuvel. What caught my attention wasn't the brand. It was the delivery method. Sublingual. You dissolve it under your tongue. It absorbs through the capillaries there and goes directly into your bloodstream. It never enters the stomach. It never passes through the small intestine. It never touches the absorption pathway that Metformin has been wrecking. It goes around the entire problem. And the form is methylcobalamin – the active form. So no conversion needed. Your body can use it directly without having to do a single thing to it first. I ordered it. Didn't tell my wife. Didn't tell my doctor. Since every time I'd gotten hopeful in front of someone I'd ended up feeling stupid two months later. First two weeks. I couldn't point to anything concrete. I almost stopped taking it. Figured it was another bottle for the drawer. Then in the middle of the third week, when I woke up in the morning my feet weren't burning. I'd fallen asleep at 11 and nothing had woken me up. 7 continuous hours. That hadn't happened in years. I lay there and didn't move. I was afraid if I shifted my feet the burning would come rushing back and the whole thing would have been a dream. Week four. I was walking through the kitchen in the morning and I stopped in the middle of the floor because I could feel the tile. Cold tile under my bare feet. The temperature of the floor. The smoothness. The way a floor is supposed to feel under a human foot. Month three. I talked to my doctor about lowering the gabapentin dose. He wasn't happy about it. But we went from 1200 to 900. The burning didn't come screaming back. For three years the dose had only ever gone in one direction. Up. Always up. And now we pulled it down and the pain didn't spike. I'm seven months in now. I'm down to 300 milligrams of gabapentin. My doctor and I are tapering slowly, which is the right way to do it. But the direction has changed. For the first time since any of this started the line goes down. Not up. EDIT: Getting a lot of PMs so let me just drop the link. Here it is: https://trynuvel.com/products/b-essence-complex

My Feet Were Burning Every Night. The Medication Was Never Meant To Fix It.

I trusted the prescriptions—until I realized they were only dulling the pain while the real problem got worse.

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